There is more science available to cancer patients than what one care team can keep up with. New diagnostics, treatments, trials, and suppliers keep emerging, and when standard of care runs out, patients are usually left to figure out what else might be possible on their own.

Future of Cancer Care Today (FCCT) helps cancer patients and their families connect the dots. Our PhD-led team surfaces diagnostic and treatment options relevant to a patient's case, including those beyond standard of care, and finds vetted suppliers and providers who work beyond standard protocols. FCCT does not replace doctors or make treatment decisions. We create playbooks and curate resources to help families ask better questions, so they can walk into the next conversation with a fuller picture.

Free for patients.

GET IN TOUCH WITH US

A curated body of suppliers, clinicians, and research groups we have encountered through our work.

Listings are informational only. FCCT does not endorse, certify, or control these suppliers, and inclusion does not imply a referral or recommendation. Please verify details directly with the supplier and discuss any next steps with the patient’s care team.

SUPPLIERS AND CARE PROVIDERS

updated regularly

SELF-SERVE PLAYBOOKS

updated regularly

Helping Patients Access, Preserve, Generate, and Use Their Cancer Data

Patients can usually access clinical notes and summary reports. Obtaining the underlying imaging, pathology, sequencing, and other test data is often more difficult. Some data and materials must be generated or preserved at a specific point in care, such as diagnosis, because they may be needed for later treatment decisions or to evaluate additional options.

FCCT has published a whitepaper on the legal and practical barriers to accessing and transferring health data. Draft forms help patients request their data or available tissue from hospitals, laboratories, and other providers and direct it to a chosen clinician, researcher, or other qualified recipient. We are seeking partners to refine and test the process. This is the first phase of a broader effort to help patients access, preserve, and use their health data throughout care.

Important to know.

Future of Cancer Care Today is not a medical provider. We do not diagnose, prescribe, or direct treatment. We provide a non-clinical support layer focused on information, education, and decision support, intended to complement your relationship with your care team. Some materials may be generated with the support of artificial intelligence and should be reviewed with your medical providers before informing any care decisions. All decisions regarding your care belong to you and your doctor.

Chief Executive Officer

Poornima Parameswaran, Ph.D.

Poornima is a scientist and entrepreneur whose work has focused on bridging the gap between scientific discovery and real-world impact. At Stanford University, she developed technology that increased scale and cut DNA sequencing costs by 50x, and taught the first course on the applications of genomics. She cofounded a genomics and AI company when her twins were one year old and led it from inception through acquisition. She was also diagnosed with multiple myeloma, which gave her a perspective on the healthcare system that no amount of scientific training could, and taught her firsthand what it takes to advocate for your own care when the system is not built to help you do that. Her work spans both for-profit and non-profit sectors; today she chairs the Strategy and Innovation Committee of the International Myeloma Foundation. She draws on her experiences as a scientist, entrepreneur, diagnosed patient, and parent, to inform and guide this work.

LinkedIn Profile →
Director, Patient Connections

Bayli DiVita Dean, Ph.D.

Bayli is a scientist and science communicator dedicated to improving the lives of those diagnosed with cancer. She developed her expertise in cancer immunotherapy research at the University of Florida and in translating complex scientific findings into accessible language during her time at the American Brain Tumor Association. Bayli was also a fellow at the National Institutes of Health, Office of the Director, through the American Association for the Advancement of Science Science and Technology Policy Fellowship, where she addressed policy needs related to incorporating the public into clinical research and bioethical issues. Inspired by her mother's diagnosis with metastatic colon cancer, she now applies her caregiving, scientific, and communication expertise to provide information and compassion to clients of FCCT.

LinkedIn Profile →
Associate, Patient Information

Donnia Robins, MSc.

Donnia is a scientist with training in chemistry, public health, and pharmaceutical sciences. Before joining FCCT, she was an Early Stage Researcher in the AGePOP consortium, an EU Horizon 2020 program focused on medicines for special populations, including older adults. At FCCT, Donnia supports patient case research, resource mapping, and preparation of educational materials for patients.

Associate, Patient Information

Nekco Kelly, BSc.

Nekco is a scientist with a background in chemistry, biology, clinical research, and regulatory compliance. Before joining FCCT, he worked as a Research Coordinator at a biomedical research foundation, where he supported studies in veteran emergency care and subclinical hypothyroidism. At FCCT, Nekco supports patient case research, resource mapping, and preparation of educational materials for patients.

Work with us.

If our work could be useful to you or your community, please reach out. There is no cost to patients or families for our help.

Patients and Caregivers

Whether you are newly diagnosed, facing progression, or trying to figure out what comes next, we may be able to help you think more clearly about the path ahead.

Clinicians, Researchers, Partners

If you are working in diagnostics, therapeutics, personalized medicine, or health technology, and believe patients need better support navigating complexity, let's talk about how our work could complement yours.

Funders

Future of Cancer Care Today is incubated by the Sijbrandij Foundation, and grew out of Sid Sijbrandij's cancer journey and lessons learned from the many other patients and families we work with.

Patients and families say that a 30-minute call with us often shifts how they think about what’s possible.